Thanks TT!

I've started doing joint compressions and made him a heavy "thing" (homemade weighted lap-pad). These seem to be helping him while we wait for the weighted blanket. I've even told him to put the weighted lap-pad on his chest while he falls asleep. It obviously falls off, but I'll try anything!

It really makes me so sad to hear what kind of cycle he's in. I wish I had taken this more seriously early on and tackled it more agressively, but the first OT we saw was nowhere near "great" and made it sound like it was no big deal at all. The more I read and learn, the more I realise how wrong that opinion is. I'll never get why some people go into careers that they really shouldn't have, especially teachers and therapists!!

The good news is that he seems to have settled well with the new OT who has said that we should really start seeing a difference in 6 weeks. If there's no difference, it means something else is going on.
I really don't want to think about him having ADD as well (his first tests showed no evidence, but supposedly this can change!!??) but, seeing as the research seems to point to this being pretty darn likely, I guess I have to keep an open mind. I guess we'll just handle whatever comes, when it comes.

Thanks so much for your replies they have helped me a lot!